Welcome to the Urethral Stricture Support blog. These pages are intended to assist those with questions regarding the disease, expected outcomes, resources, and emotional and informational support. AT NO TIME WILL MEDICAL ADVICE OF ANY KIND BE RENDERED. With your permission, your commentary may be included within the topics discussed within this forum. Moderators Cesar and Tim have a combined 50 years (celebrating a half-century of difficult urination) of experience in living with, dealing with, and overcoming what is broadly considered a disease with a high rate of morbidity. We have experienced every common surgical and instrumental "fix"/"repair" offered including the implantation of the Urolume Endoprosthesis. Both moderators have experience with the Urolume Endoprosthesis. To the best of our knowledge, this is the first and only such support group anywhere. Please, do not be afraid or embarrassed to ask any question with regards to your diagnosis. We encourage you to discuss any and all information offered within this blog with your Urologist. A proactive and informed patient usually receives the best care.

With your help, and well-considered posts, the information gleaned from this site should help the countless scores of males aged 18 and over who are encountering the diagnosis of "Urethral Stricture".


DISCLAIMER: We do not provide medical advice. We disseminate information relevant to urethral stricture disease. While we encourage research (and participation in research), we endorse no medication or treatment protocols. PLEASE FEEL FREE TO CONTACT US WITH SPECIFIC QUESTIONS @ urethralstrictures[no spam] at yahoo dot com

Thursday, December 8, 2011

OPINION: How best to proceed with life after receiving the diagnosis of urethral stricture disease PART 2

*"Scott", continued: Our urologist wanted him to undergo an immediate open urethroplasty, and explained that the procedure offered the best chance for cure. Without it, he felt that "Scott" would be looking at a receiving a partial urostomy within a very few years. The family conceded, and he eventually went to Cornell Presbyterian Medical Center in New York City. He underwent several individual "staged" surgeries, the last of which was a plastic reconstructive procedure. I do not know the eventual outcome, however, he did function well for at least three years afterwards.

Optical urethral surgery has only been around since the early 1950's.  Rigid cystoscopes which were pioneered because of WWII had the reputation of causing damage to the urethra when passed past the penile urethra, and into the bulbar aspect of the structure. This damage was often resultant in strictures, and visual procedures were reserved for only penile-area defects, and T.U.R.P. (trans urethral resection of the prostate). In the early 1970's, advances in fiber optics allowed for the development of the flexible cystoscope, and the inception of visual internal urethral procedures as we know them today.

When you combine all of this information, it becomes somewhat apparent that the best way in which to persevere is to know your condition, your body, and your psyche thoroughly. While this disorder/disease/malady is not rare, it is not at the forefront of medical priority, sans a very few research institutions and reconstructive urologists. Education is the key to living with the diagnosis of urethral stricture stenosis.

Per: Moderator Tim

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