Welcome to the Urethral Stricture Support blog. These pages are intended to assist those with questions regarding the disease, expected outcomes, resources, and emotional and informational support. AT NO TIME WILL MEDICAL ADVICE OF ANY KIND BE RENDERED. With your permission, your commentary may be included within the topics discussed within this forum. Moderators Cesar and Tim have a combined 50 years (celebrating a half-century of difficult urination) of experience in living with, dealing with, and overcoming what is broadly considered a disease with a high rate of morbidity. We have experienced every common surgical and instrumental "fix"/"repair" offered including the implantation of the Urolume Endoprosthesis. Both moderators have experience with the Urolume Endoprosthesis. To the best of our knowledge, this is the first and only such support group anywhere. Please, do not be afraid or embarrassed to ask any question with regards to your diagnosis. We encourage you to discuss any and all information offered within this blog with your Urologist. A proactive and informed patient usually receives the best care.

With your help, and well-considered posts, the information gleaned from this site should help the countless scores of males aged 18 and over who are encountering the diagnosis of "Urethral Stricture".


DISCLAIMER: We do not provide medical advice. We disseminate information relevant to urethral stricture disease. While we encourage research (and participation in research), we endorse no medication or treatment protocols. PLEASE FEEL FREE TO CONTACT US WITH SPECIFIC QUESTIONS @ urethralstrictures[no spam] at yahoo dot com

Saturday, July 14, 2012

A note from Moderator Tim

Sorry for not having posted in a little more than six months, I've had problems with the Urolume Endoprosthesis which was implanted in the last century;  it was one of the first available in the United States, and has been causing angst for the last several years.

We have collected TONS of great info, and have been in contact with a physician who has a copy of the  BIOENGINEERED URETHRAL TISSUE RESEARCH STUDY  being conducted at Wake Forest University, in North Carolina. I have viewed a copy of the research report in THE LANCET, and believe it offers the best hope for those of us with complex, multiple, or strictures in excess of 4cm in length.

There's also some great news on the "Urised" front.  Hyophen®, has been approved by the FDA, it's similar in makeup to Urised, and fills the gap in the urinary analgesic scene left by the difficult avaliability of Prosed DS after the September, 2011 recall.

My thanks to those of you who have commented and written, I apologize for not replying sooner, but I had to budget my time judiciously because of the health problems caused by the stent. Please, continue to comment, and should you have a story of your "travels on the stricture express", research information, or anything pertaining to the topic deemed suitable for publication (all of this stuff is approved by an attorney and a physician prior to posting).

I am in the process of contacting the urologists who have been invaluable in the operation of this site for purposes of requesting updates as to the latest in technologies and techniques.

**A note to the the urologists who frequent this site, my apologies for not keeping in touch, suffice to say that I had a fairly substantial battle of my own to fight, and that took the majority of my time and concentration. But I'm back now, and hope to fulfill my obligation as best as possible.

Per: Moderator Tim

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